MS the whole story.
Well as most of you know by now I was admitted into Riverside last night for MS excasperations(spelling error) and because my brain MRI showed atleast 6 new lesions.
Alot of you have asked about what all of this means and instead of becoming a broken record I thought I could share my current story via my awesome blog:
ok here it goes..
I was diagnosed with MS 3 years ago. I had numbness and tingling on my right side that traveled from my hand to my waist. I dealt with that from late winter and started treatment in early spring. My nuerologist considered what I had "presumed MS" because it was the only issue I had ever experienced. 3 years later..here I am, it's official, I have had multiple excasperations. So my diagnosis should change.
here's the latest. Last Tuesday, I starting to feel very shaky and weak. I couldn't hold anything as little as a pen in my left hand. I honestly wasn't thinking it was MS. It got worse and my left arm started to tingle and shooting pain started traveling down my left leg. At that point, I knew. MS was working hard on me. I didn't know what to do, all I wanted to do was cry but I knew I could keep on moving and needed to keep the tears to myself. I pretended to feel a little better but I knew I was getting more numb. Last Friday I knew I was completely numb on both sides, but the left was much worse. I was so thankful my family dr was able to get me in on Monday. I wished I could be honest with myself and my dr's and say, I needed help then, I just couldn't. My kids and my husband needed me and I wouldn't allow MS win this time. Well, come Monday my family Dr knew I was worse than I was letting on. I couldn't use my left side to do anything. So he scheduled the brain MRI and Tuesday afternoon at 2pm I went and had my MRI, I left the procedure at 330. At 345, I was buying trash bags at CVS and got a call from te doctor. She always has to give me the bad news. She said the initial read on my MRI showed 6 new lesions. She asked me how I was feeling and every little emotion and feeling bursted out..all in the middle of the store. She said she would call my nuerologist and see if they wanted me admitted in the hospital tonight or tomorrow..I then sat on the floor and cried..paid for my items and left. Drove to my moms which is 5 minutes away and got the call that I was being admitted that night and would get a call when my bed was ready. I got the call at 430 and Here I am. They started my meds while I slept. I woke up at 4 this morning with pain in my legs, and had the nurse assist me to the bathroom. Around 7am, I woke up for breakfast and had more feeling on my left side. Nothing significant, but at this point I'm grabbing onto anything.
A few minutes ago a few attending and a student came in to do the typical tests. Turns out I can't walk right now. sad face.
Most likely will be here a few more days..but still praying to leave today. BUT as I have said since this started last Tuesday, this is a blessing in disguise. There is finally talk of a long term medicine.
Prayers and visits as per requested on facebook.
Alot of you have asked about what all of this means and instead of becoming a broken record I thought I could share my current story via my awesome blog:
ok here it goes..
I was diagnosed with MS 3 years ago. I had numbness and tingling on my right side that traveled from my hand to my waist. I dealt with that from late winter and started treatment in early spring. My nuerologist considered what I had "presumed MS" because it was the only issue I had ever experienced. 3 years later..here I am, it's official, I have had multiple excasperations. So my diagnosis should change.
here's the latest. Last Tuesday, I starting to feel very shaky and weak. I couldn't hold anything as little as a pen in my left hand. I honestly wasn't thinking it was MS. It got worse and my left arm started to tingle and shooting pain started traveling down my left leg. At that point, I knew. MS was working hard on me. I didn't know what to do, all I wanted to do was cry but I knew I could keep on moving and needed to keep the tears to myself. I pretended to feel a little better but I knew I was getting more numb. Last Friday I knew I was completely numb on both sides, but the left was much worse. I was so thankful my family dr was able to get me in on Monday. I wished I could be honest with myself and my dr's and say, I needed help then, I just couldn't. My kids and my husband needed me and I wouldn't allow MS win this time. Well, come Monday my family Dr knew I was worse than I was letting on. I couldn't use my left side to do anything. So he scheduled the brain MRI and Tuesday afternoon at 2pm I went and had my MRI, I left the procedure at 330. At 345, I was buying trash bags at CVS and got a call from te doctor. She always has to give me the bad news. She said the initial read on my MRI showed 6 new lesions. She asked me how I was feeling and every little emotion and feeling bursted out..all in the middle of the store. She said she would call my nuerologist and see if they wanted me admitted in the hospital tonight or tomorrow..I then sat on the floor and cried..paid for my items and left. Drove to my moms which is 5 minutes away and got the call that I was being admitted that night and would get a call when my bed was ready. I got the call at 430 and Here I am. They started my meds while I slept. I woke up at 4 this morning with pain in my legs, and had the nurse assist me to the bathroom. Around 7am, I woke up for breakfast and had more feeling on my left side. Nothing significant, but at this point I'm grabbing onto anything.
A few minutes ago a few attending and a student came in to do the typical tests. Turns out I can't walk right now. sad face.
Most likely will be here a few more days..but still praying to leave today. BUT as I have said since this started last Tuesday, this is a blessing in disguise. There is finally talk of a long term medicine.
Prayers and visits as per requested on facebook.
Allison, as I read this, I just felt in awe of your bravery. You are an amazing woman to be handling your present circumstance with such profound grace and optimism. It's really wise to do so because a positive attitude is everything when it comes to recovery. I know you'll get great medical help now, too, but your faith that things will get better will help those doctors do their job. Keep thinking and reading about of all the cases when the patient's determination really made the difference. I know they will help you focus on the outcome that everyone is praying for.
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